I Have Breast Cancer; I'm Not Stupid

I used to care how I looked. I mean, really care. If the humidity was high, I devoted untold amounts of time to getting that very annoying little wave out of the top front of my head. It was very stupid looking, especially since the rest of my hair was fine and, though a little wavy, primarily straight. It would bother me all day long. Every time I glanced at myself in a mirror or reflection in a window, I would immediately set to bending my hair into submission. It never really worked.

When I found out that I was going to have to have chemotherapy, the very first thing I thought was, "no hair.' It was traumatic. Everyone kept reassuring me that it would grow back. That didn't exactly make me feel any better. Then there were sores inside my mouth that made it excruciating to eat anything, even frozen yogurt. There were hideous and painful sores on my hands. My personality virtually disappeared into the constant, all-over pain.

After my mastectomy, it was hard to feel good about my body. Harder still with sores, that classic moon face from the steroids, the extra 15 pounds I gained (also from the steroids), and losing absolutely all of the hair on my body. I started to look at myself only from the neck up. On most days, it was tough to even do that. That was okay, though. I needed all of the energy I could muster just to have the will to go on with the treatments.

By the time I got to radiation, I didn't care so much about the hair. I stopped wearing my wig, wore a ball cap for a while (a tasteful pink Phoenix Suns cap) and, after a while, just went bare-headed. I'd gotten some of my hair back by then and I consoled my co-workers (who were a little nervous about how to deal with mostly bald Ggirl) by telling them, "You'll get used to it. I did." I said it cheerfully.

I started to lose weight when I began radiation and got back to my old pre-steroid size. I got a breast prosthesis that didn't surreptitiously migrate up towards my neck when I wasn't looking. My eyebrows came back. My hair came back, darker and curly.

But I just don't care anymore. If my hair isn't looking good, I go with that. It is, after all, hair. It's completely unruly and I'm good with that. I don't wear makeup. Like after my dad's suicide, I just don't have the energy for it. I can come to work, barefaced, or I can stay home with makeup on. I don't care what I wear. I have this post-reconstruction vest-like bra that's impossible to wear with most of my clothes. My breasts aren't yet symmetrical. I don't care.

One of my co-workers came into my office today and told me she thought my hair is cute today, liked my (turquoise) necklace and heart-shaped earrings. I looked at her blankly. Can't you see I don't care anymore? I know people are trying to be nice when they compliment me. They tell me I look pretty. It's a pity compliment, though. I've got breast cancer, but it did not make me stupid. I say thanks, because that's what one is supposed to do when complimented.

I don't think I was a shallow person before. Caring about how I looked was just part of my whole gotta-be-perfect take on the world. I look at myself in the mirror now and wonder where my pre-breast cancer prettiness went. Then I remember that I just don't care.

Good to be Needed

I bought three new workout dvds this week. Two of them were Denise Austin videos and one was a yoga video. Oh how it makes me long to get back to working out. Sometimes I even start to believe that, after I leave work, I can go home and at least do some yoga. On my drive home, I always realize I'm not strong enough yet.

I'm still only working three hours a day, at most. I go home and have to lie down for about half an hour or so. That's a new development this week. Usually I just park my butt on the sofa and rest there, but this week has been taking a toll. I get that massive fatigue thing that makes my back, arms and legs ache.

I have been busier this week at work. I answered the phone for a couple of hours one day, since I was the only person here. I've also done some proofreading and updating the database I created. The big energy drain, though, was having to talk with co-workers. That takes enormous energy. I've already spent about an hour this morning, listening to a co-worker. He was funny, but I'm not sure it was humorous enough to justify the energy drain.

One of my colleagues just called to request a database revision. It's good to be needed.

Enough Already

No more Anna Nicole Smith coverage.

No more coverage of Oscar night fashion.

Ditto anything about Lindsay Lohan and Britney Spears.

Did I mention Paris Hilton? Stop it.

It's Expensive Being Me

"Grief is depression in proportion to circumstance; depression is grief out of proportion to circumstance. It is tumbleweed distress that thrives on thin air, growing despite its detachment from the nourishing earth. It can be described only in metaphor and allegory...Grief is a humble angel who leaves you with strong, clear thoughts and a sense of your own depth. Depression is a demon who leaves you appalled." ~ Andrew Solomon, The Noonday Demon: An Atlas of Depression

I saw my psychiatrist yesterday to check in with how I'm doing. I came away with a new antidepressant. Good news, bad news. I knew that something had to be done. I've been having significant symptoms of depression since my surgery, though I don't cry as much as I did the first five weeks. I've been unable to concentrate, not interested in food, sad, tired. I've lost about ten pounds since before the surgery. I'm still in some pain and I think that I tend to cry when I'm in that part of the day (after 11:00 a.m.).

On the other hand, my goal is to decrease the amount of medication that I'm on. I will probably never be able to completely stop taking antidepressants. The years and years of repeated, intense trauma have left an indelible mark. There's a genetic tendency for depression in my dad's family. Well, there's a genetic predisposition for just plain crazy in my dad's family.

I'm okay with that. I'd just like to not have a handful of pills to take every day. That won't be happening for a while yet. I just have to work on taking care of myself, physically and emotionally. I have to continue to eat, whether or not I feel like it.

I haven't felt like eating in a very long time. My doctor asked me if there was some way to make food more palatable. The answer is no. I may be hungry and I may be having something I generally like, but once it's in front of me, I completely lose interest. I can't continue to lose weight.

All of these drugs take a toll on my budget, too. To quote another Texas girl, "It's expensive being me." In so many ways.

The Path of Wildness

"We need the tonic of wildness, to wade sometimes in marshes where the bittern and the meadow-hen lurk, and hear the booming of the snipe; to smell the whispering sedge where only some wilder and more solitary fowl builds her nest, and the mink crawls with its belly close to the ground." ~ Henry David Thoreau

The Good Boy is gone. I came by yesterday a couple of times and he was shockingly thin and lethargic. I petted him for a while and was grateful for the purrs. I had an appointment with my psychiatrist today, so I got up extra early so I could come check on him. I couldn't stand the thought that he might have needed food and wondered where I was. I checked again when I got back from my appointment.

He was strong and gentle. He was courageous and intelligent. His chose the path of wildness and he chose to allow me to help him. I was honored. He would disappear for a few months, a few days or even for a year and then turn up, hungry and vocal. He could have chosen to hang around and be fed. No need to hunt for his own food. He chose the path of wildness.

Since the time he was just a kitten, he would cross the busy street outside my office and head off into a field that surrounded the old airport. He could be a real cat there--hunting prey, beholden to no one. He must have had many adventures, but I know nothing about them. He chose the path of wildness.

After many years, he allowed me to pet him. His demonstration of trust and affection kept me going through some very tough chemo times. He was there for me and I tried to make sure he could always rely on me. We understood each other.

When he started looking really sick, I wished so much to do something for him. But he chose the path of wildness and that path can be hard and lonely. When death came, I'm sure he met it with dignity and courage.

He knew I loved him. I think he loved me. I'm deeply honored that he allowed me to be his friend.